The recognition and awareness of sickle cell; the worlds most common genetic disorder, is much needed and deeply appreciated.
It was first written about by one of our black champions of history Africanus Horton in 1874.
Many consider it a black illness however it does impact the white population with one in every 450 white British people now being born with the sickle gene.
Many suffer in silence and experience the vacuum of minimal knowledge to help them at school, work, access to public services, and even our nurses and doctors not understanding what is needed to help them. This needs to end.
People that suffer from sickle cell are proud and made up of many fine attributes, we welcome those amongst us happy to be ambassadors by virtue of what they have achieved and how they can help others. Oh and to our friends free of the illness, give Blood, it sends a powerful message of responsibility.
In 2008 the United Nations passed a resolution to raise awareness of sickle cell anaemia in recognition of the fact the illness is amongst the world’s foremost lethal genetic diseases.
Please inform your audience, indeed the world, on the above simple message. I raise funds for the Sickle Cell Society, a UK national Charity that cares for those with Sickle Cell Disorders and their families. I will be running in the British 10K and raise funds at www.justgiving.com/sicklecellawarenesskg As far as I know I am the only person with the illness that has run in the event. Perhaps you can find more? That’s an interesting challenge!
I hope you take the time to mention World Sickle Cell Day on your radio station, website and facebook pages. You certainly will be doing the right thing for a great cause.
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Mr Kye Gbangbola MBA
Interim Chairperson Sickle Cell Society